Dallin and Alanna went to their fourth CF clinic Feb 15th.
David their respiratory therapist drew Dallin's monster teeth on his mask. He loves to play and tease them. The receptionist got quite a kick out of David and Dallin.
Dallin doing his PFT.
Dallin playing with my phone. Notice the 'favorite' toy next to him.
CF buddies.

Alanna has gained 8lbs since starting her enzymes. She FINALLY wears a size 6 regular in jeans. Her shoes size has gone up two sizes! She has grown 2 whole inches taller. Dr. Lever very pleased. Alanna swallows her pills like a pro. She does her Vest twice a day without being asked too. She loves to read during her treatment, so she can't wait to go read her books. She just got a new nebulizer and is very excited about it.
Dallin has gained 6lbs and grown 2 inches like his sister. He is VERY happy to be out of a 5 point car seat and into a big kid booster. He finally hit 40lbs a few months ago. He always reminds me to give him his pills with his food and like Alanna, he swallows them like a champ! Doing his Vest twice a day is not his most favorite part of the day. He also got a new nebulizer. Now we have two, instead of one. The old one kicked the bucket a few weeks ago. He was SO excited when he saw the new ones. They both squealed with delight, Dallin's favorite part about the new neb is that the on/off switch lights up. Alanna's is the handy little place to set the mouthpiece while you prepare to do your treatment. So funny, yet so sad.---------------------
Back in December we got to go to a benefit dinner for Tony, a 15 year old boy who attends our local high school. He has CF and is in complete liver failure, as of November 27th he's on The List. We hunted down his parents to talk to them, they had so much to tell us. They were so kind to us. They are amazing, amazing parents. Tony is amazing as well. After going to Disney World three years ago with Make A Wish he decided he wanted to help other children get their Wishes. He and his 17 year old brother raised $24,000 in two years!!!! Make A Wish presented him with an award-which one I can't recall-for his tremendous accomplishment. I'm excited about possibly volunteering with them and the CF foundtion.
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Our family LOVES home video's, we have hours and hours of them on DVD. Watching them (and looking at pictures) it's hard to believe Dallin and Alanna's CF went undiagnosed for so long. They had only about a million different symptoms their whole life. Since last July every few weeks I'll discover something new that we thought was off then and realize now that it was CF. We have a really nice book called 65 Roses. It's about a little girl who has CF. Both, actually all of our kids love it. We got to read it the other day to my best friends boys. They got to try out the kids Vest's too. Dallin and Alanna loved showing them and their friends loved trying it out. We finally have gotten lots of their medical crap under control. We got on a really helpful plan to pay for their Vest's. Each one cost $16,000 and we only have to pay $50 a month for each until November. Hopefully. Two of their meds have been covered completely by CF patient assistance, for now they are saving us about $7,078 a month. Things are coming together and that's all we can ask for.




2 comments:
Oh Megan, they're so cute and I'm really happy to hear that they're doing so well on their meds.
Just wanted to send my love!
Cystic Fibrosis?? How did you know? Sounds kinda scary is it curable? Sounds like they are doing well so that's good.
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